Category: Life writing, Creative writing and Performance

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20th - 21st Centuries Contemporary Life writing, Creative writing and Performance Literature, Medicine and Science

The Poetics and Politics of Alzheimer’s Disease Life-Writing

by Martina Zimmermann, honorary Associate Professor in Pharmacology at Goethe University Frankfurt, with an MA in Literature and Medicine and a second PhD in Health Humanities at King’s College London.

I am a pharmaceutical scientist by training who specialised in neuropharmacology. For over 15 years, my research interests have been the molecular mechanisms that cause the death of brain cells in conditions like Alzheimer’s disease. While pursuing, and later supervising, laboratory based experimental projects, I more and more often wondered how patients actually experience the condition which I only knew from studies in cell culture and other disease models. The methodologies, models and approaches I used were unsuited to answering this question.

Still, Alzheimer’s patients would not write…

I began looking for patient accounts about a decade ago. At the time, I found only just over a dozen of books published in English, and one diary in French. I was astonished that there were so few, especially because I felt that the popular press had long preferred Alzheimer’s disease to any other subject in its health and wellbeing pages. Also, patients usually have five to ten years between diagnosis and death, and, at the time of clinically perceivable onset, can continue to articulate themselves proficiently in writing, as well as retaining figurative language. Still, Alzheimer’s patients would not write.

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Life writing, Creative writing and Performance

Swallow (early draft)

Books to inspire you: Nadia's recommended reading.

Nadia Saward graduated from King’s College London with a BA in English Language and Literature. One of her poems was shortlisted for the Bridport Poetry Prize in 2016. She is about to start an MA in Creative Writing Poetry at Royal Holloway, University of London.

*

Swallow

The red dirt of the pyramids
was still under my wing, when I found
a town with roofs like small mountains
and a crying prince.

And a crying prince
with September- blue eyes, only wished
for blindness. I gave it to him.
A sapphire for your son, a ruby for your mother.

A sapphire for your son, a ruby for your mother,
goes my song. I drop jewels down
coughing chimneys- in the morning
they will think the stars have fallen.

They will think the stars have fallen,
and thank their gods.
I nestle in the hollow between your legs,
and wait for night to come.

And wait for night to come,
to visit the woman at the window,
time scars her face. Hands whittled to bone.
I coat her skin with gold.

I coat her skin with gold,
let it gather, light as snow
on the sill, until all she sees is
the sun’s widening mouth.

The sun’s widening mouth
brings me no warmth.
Cold feathers my throat.
In the morning they will find me,
a beggar at his feet.

*

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Early Modern and Shakespeare Life writing, Creative writing and Performance Visual and Material Culture

Early Modern Verbatim Theatre: A Reflection

by Lucy Munro, Reader in Early Modern English Literature at the Department of English, and Emma Whipday, Leverhulme Early Career Fellow at UCL

In 1624, a play entitled The Late Murder in Whitechapel, or Keep the Widow Waking was staged at the Red Bull playhouse in Clerkenwell. Written by Thomas Dekker, John Ford, William Rowley and John Webster, it was based on accounts of two recent crimes. The first was the murder of a Whitechapel woman, Joan Tindall, by her son, Nathaniel, which became the subject of at least two ballads, one of which survives. The second was the forced marriage of a 62-year-old widow, Anne Elsdon, to a much younger man, Tobias Audley.

tavern scene
A woodcut from Samuel Rowlands’s ’Tis Merry When Gossips Meete (c. 1613), showing a widow, wife and maid drinking in a tavern

Tobias lured Anne to a tavern, where he plied her with alcohol and tried to persuade her to promise to marry him – a promise that could be legally binding if it was said before witnesses. After several days he eventually seems to have got some kind of agreement from her, and a priest hired for the purpose married them. However, the ‘marriage’ became the subject of a series of cases in the secular and religious courts.

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Colonial, Postcolonial and Transnational Culture Life writing, Creative writing and Performance Literature, Medicine and Science

The long read: Arabic illness narratives and national politics

by Faten Hussein and Neil Vickers in conversation

Faten Hussein (FH) is a LAHP-funded doctoral researcher in Comparative Literature and the Medical Humanities at King’s College London. Her research investigates representations of illness in Arabic literature. She is specifically interested in what literature reveals about cultural and social attitudes towards illness, and the political, social, and economic determinants in access to health. She is about to take up a fellowship with the House of Common’s International Development Committee, through the Parliamentary Office for Science and Technology (POST).

Dr Neil Vickers (NV) is Reader in English Literature and the Medical Humanities at the Department of English, and co-director of the Centre for the Humanities and Health. He is associate editor of the journal Medical Humanities, published by the British Medical Journal group. 

NV: Hello Faten. It’s a real privilege to be able to discuss your work with you, and to bring it to wider public notice through this blog interview. Why don’t you begin by telling our readers what you work on?

FH: I work on written accounts of illness from the Arab world. These can be fictional or autobiographical and in any form, so long as illness has a central place in them.

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19th Century Culture, Text and History Life writing, Creative writing and Performance Visual and Material Culture

Leaves of Silk

by Clare Brant, Professor of Eighteenth-Century Literature and Culture and Co-Director, Centre for Life-Writing Research

The Dear Diary exhibition is now open, until 7th July! Promotion got underway well before opening, with various radio features including Radio 2’s Jonathan Ross Show on 4th May, and  BBC London, Monocle Radio, Radio Oxford and other outlets; on 3rd June, I take Dear Diary to Radio 4’s Saturday Live show (listen from 9:00 BST).

One publicity commission was for the Sunday Times series ‘6 of the Best’. I thought long and hard and put together a list only to discover that ‘Best’ is determined by what the picture editor thinks can be illustrated best. Several suggestions hit the cutting room floor. One was  British artist Ian Breakwell’s visual diary – an idea I owe to Lucy Bayley, a PhD student at the ICA (thank you, Lucy). You can see a selection of Breakwell’s work at the Tate, including The Walking Man Diary (1975-1978).

A diary’s lure of intimacy…

Breakwell has made various experiments with the diary form. One of the most compelling is the photographic diary he made of an unknown man who regularly walked past Breakwell’s flat in Smithfield in the City of London, where from his third floor window the artist was often looking out. The images all have the same vantage point and the same mysterious subject; the passing of time is captured through the diary unevenly, so that some photographs are taken seconds apart while others are separated by months. The resulting pattern of similarity and difference, heightened by collage, plays with a diary’s lure of intimacy: by denying us even incremental knowledge, Breakwell makes his diary intriguingly baffling.

W.P. Barbellion
W.P. Barbellion, or Bruce Cummings, unknown photographer, via Wikimedia Commons

Another suggestion was W.P. Barbellion, The Journal of a Disappointed Man (1919). This diary has an extraordinary story. The author’s real name was Bruce Cummings; he made his pseudonym from Wilhelm, Nero and Pilate as examples of the most wretched people to have lived.

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