We are delighted to announce the programme of the 2018 Postgraduate Bioethics Conference (PGBC), hosted by the Department of Global Health & Social Medicine at King’s College London. The event will be held on the 23rd and 24th of July, 2018, at King’s College London’s Strand and Waterloo Campuses .
The PGBC is a two-day annual conference where Master’s and PhD students meet and share their bioethics research, as well as develop relevant skills for their academic and professional careers.
This year, the theme of the conference is Bioethics in the Public Square, focusing on debates within bioethics that extend into matters of political concern. These debates cover a wide range of topics relating to the construction of just societies, the boundaries of our political decisions, and the role bioethicists should play in liberal democracies.
2018 PGBC ORGANISING COMMITTEE
Dr med. Sandra Loder started her career as a Medical Officer in the German Navy. After working in a German Military Hospital, abroad in Foreign Deployments, and as a Ship’s Doctor, her time in the Navy ended. Her civilian career continued as a specialist, and later as a consultant, in Anaesthesia, Intensive Care Medicine and Pain Therapy. Sandra’s profession ignited her interest in bioethical issues and led to her participation in the Bioethics Master’s Programme at King’s College London. Her current research interests are the ethics of assisted reproduction, ethical approaches that differ among nations and global health ethics.
Giulia Cavaliere is a third-year Wellcome Trust PhD student in Bioethics & Society at the Department of Global Health and Social Medicine at King’s College London. Her research focuses on ethical and social questions raised by new reproductive technologies such as mitochondrial replacement techniques. She is particularly interested in eugenics and in how these technologies face us with questions concerning “what sort of people should there be”. Giulia teaches the undergraduate module ‘Ethics of Emerging Technologies’ at KCL and she loves teaching as much as reading moral philosophy.
Edgar René Ruiz López is currently enrolled as a PhD student at the department of Global Health and Social Medicine of King’s College London. His project, funded by the Mexican National Council on Science and Technology, is on the topic of exploitation in the Mexican surrogacy industry. He is interested in topics related to distributive justice and on the intersection between personal identity and ethics.
Programme
DAY ONE: MONDAY THE 23RD OF JULY
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09:45 – 10:15
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Welcome and Registration Room: FWB G.73 |
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10:15 – 10:30
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Opening: Giulia Cavaliere, Edgar René Ruiz López, Sandra Loder (King’s College London) Room: FWB G.73 |
| 10:30 – 11:30 |
Keynote 1: Expertise in Bioethics: Scope and Challenges Dr Silvia Camporesi (King’s College London) & Dr Jonathan Ives (University of Bristol) Chair: Edgar René Ruiz López; Room: FWB G.73 |
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11:30 – 12:00 |
Coffee Break |
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12:00 – 13:15
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Parallel Sessions 1 (1a, 1b, 1c) |
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13:15 – 14:15 |
Lunch |
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14:15 – 15:15
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Workshop: All you Need to Know/Ever Wanted to Know on Surviving (Early) Career in Academia Dr Karin Jongsma (University of Utrecht) & Dr César Palacios-González (King’s College London) Chair: Giulia Cavaliere; Room: FWB G.73 |
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15:30 – 16:20 |
Parallel Sessions 2 (2a, 2b, 2c) |
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16:20 – 16:50 |
Coffee Break |
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16:50 – 17:50
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Keynote 2: On Courageous and Productive Health Ethics Dr Sridhar Venkatapuram (King’s College London) Chair: Emma Wynne Bannister; Room: FWB G.79 |
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19:30 |
Dinner (Brasserie Blanc South Bank) |
DAY TWO: TUESDAY THE 24TH OF JULY
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9:15 – 9:30 |
Coffee and Welcome to Day Two Room: FWB G.73 |
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9:30 – 10:45 |
Parallel Sessions 3 (3a, 3b, 3c) |
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10:45 – 11:15 |
Coffee Break |
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11:15 – 12:15 |
Keynote 3: Science for Policy, Policy for Science? Considerations from an Ethicist-Politician Professor Annelien Bredenoord (University of Utrecht) Chair: Georgina Morley; Room: FWB G.79 |
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12:00 – 13:15
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Workshop: Publication: Strategy and Tactics Dr Adrian Blau Room: FWB G.79 |
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13:15 – 14:15 |
Lunch |
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14:15 – 15:05 |
Parallel Sessions 4 (4a, 4b, 4c) |
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15:15 – 16:15
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Workshop: Applying for Funding 101 Dr Federica Lucivero (University of Oxford) and Paul Woodgate (Wellcome Trust) Room: FWB G.79 |
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16.15 – 16:45 |
Coffee Break |
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16:45 – 17:45 |
Keynote 4: What Should Academics do in the Public Square? Indeed What Should They do Anywhere Else? Professor John Harris (University of Manchester / King’s College London) Chair: Giulia Cavaliere; Room: FWB G.79 |
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17:45 – 18:00 |
Closing Remarks followed by drinks |
PARALLEL SESSION 1a
| Chair: Arianna Manzini | Room: WBW 3/7
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| Paolo Corsico (University of Manchester)
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Ethical, Legal, and Social Issues in Novel Neurobiological Approaches to Psychosis and Schizophrenia: A Qualitative Study
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| Natalie Lane (University of Glasgow)
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Time to Trump the Goldwater Rule: Are psychiatrists ethically justified in publicising their opinions on the US President’s mental health?
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| Leonie Mol (King’s College London)
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The Ethics of Ethics: Bureaucratisation and Professionalisation of Formal Ethical Clearance |
PARALLEL SESSION 1b
| Chair: Edgar René Ruiz López | Room: WBW LG/11
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| Jordan Parsons (University of Bristol)
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Home Medical Abortion: Lagging Legislation in the UK
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| Claire O’ Connell (University College Cork)
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Bioethics and the Regulation of Assisted Human Reproduction in Ireland
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| Joona Rasanen (University of Oslo)
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Law, Morality and Abortion Rights after Artificial Wombs |
PARALLEL SESSION 1c
| Chair: Dr Gry Wester | Room: WBW 2/1
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| Andrea Martani (University of Basel)
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Ethical and legal issues concerning experimental treatment of terminally-ill patients: from theory to practice
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| Bernadette Roest (University of Humanistic Studies)
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Euthanasia & the family in the Netherlands: a systematic mixed studies review
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| Jessica Brown (City, University of London)
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Are Public Perceptions of Palliative Care Preventing Timely Transfer? |
PARALLEL SESSION 2a
| Chair: Dr César Palacios-González | Room: WBW 3/7
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| Johanna Eichinger (King’s College London)
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EctoEthics – between old objections, new freedoms and new constraints
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| Gala Rexer (Humboldt University of Berlin)
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Clinical Encounters: The Construction of Israeli Fertility Clinics as Utopian Non-Places |
PARALLEL SESSION 2b
| Chair: Georgina Morley | Room: WBW LG/11
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| · Dominik Haserwarter (Ludwig Maximilian University of Munich)
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Ethical challenges in the medical care for refugees on public hunger strike: A qualitative interview study with health care personnel
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| · Mira Leonie Schneiders (University of Oxford) | Ageing in Cambodia and the role of older people: giving care and getting care |
PARALLEL SESSION 2c
| Chair Rachel Thompson
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Room: WBW 2/1 |
| Aubrey Incorvaia (Georgia Institute of Technology)
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Beyond Consent: Incorporating Patient Perspectives into Clinical Trial Research Development
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| Sofia Iacomussi (King’s College London) | Deliberative democracy towards genome editing |
PARALLEL SESSION 3a
| Chair: Daniel Tigard | Room: WBW 3/7
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| Agata Ferretti (ETH Zurich)
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Big Data Trends in Biomedical Research: Implications for Ethics Review Boards
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| Heilien Diedericks (King’s College London)
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Digital Pills and Promises: An Analysis of the Declared Benefits and Implications of Digitized Medication
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| Marta Fasan (University of Trento)
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TreC Platform: New Technologies and Fair Access to Medical Services |
PARALLEL SESSION 3b
| Chair: Edgar René Ruiz López | Room: WBW LG/11
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| Victoria Charlton (King’s College London)
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Does prioritising the new promote fairness? The role of innovation in healthcare priority setting at the UK National Institute for Health and Care Excellence (NICE)
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| Francisca Stutzin Donoso (University College London)
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The ethics of chronic diseases
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| Lynette Martins (University of Pennsylvania)
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How Conscientious Objections of Health Care Workers Conflicts with Justice in Healthcare
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PARALLEL SESSION 3c
| Chair Giulia Cavaliere
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Room: WBW 2/1 |
| Javiera Perez-Gomez (University of Maryland)
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The Expressivist Objection to the Use of Prenatal Testing for Selective Abortion: A New Defense
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| Aksel Sterri (University of Oslo)
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Sexist sex selection
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| Carla Maria Reale (University of Trento)
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Transgender and intersex issues as bioethical matters: compulsory sterilization and surgical intervention on minors in Europe
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PARALLEL SESSION 4a
| Chair: Giulia Cavaliere | Room: WBW 3/7
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| Nienke de Graeff (University of Utrecht)
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Arguing about genome editing in animals: arguments in the academic literature
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| Anna Melnyk (University of Twente)
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Representation of moral emotions in the assessment of the desirability of technologies for health risks diagnosis
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PARALLEL SESSION 4b
| Chair: Sandra Loder
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Room: WBW LG/11
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| Daniel Tigard (Tulane University)
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Taking the Blame: Appropriate Responses to Medical Error
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| Bukola Arikawe (National Biotechnology Development Agency)
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The Role of Peer Pressure in Research Misconduct among Researchers in the University of Ibadan
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PARALLEL SESSION 4c
| Chair Dr David Lawrence | Room: WBW 2/1
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| Tena Thau (University of Oxford)
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The Ethics of Punishing Athletes Who Dope
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| Richard Gibson (University of Manchester)
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Understanding Moral Bioenhancement through Epidemiological Models
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KEYNOTE SPEAKERS
Dr Silvia Camporesi is a bioethicist with an interdisciplinary background in biotechnology, ethics, and philosophy of medicine. She’s the Director of the MSc program in Bioethics & Society at King’s College London. She holds a PhD in Philosophy of Medicine from King’s and one in Foundations of Life Sciences: Epistemology and Ethics from the European School of Molecular Medicine, University of Milan. Over the past decade, Silvia has written extensively about the ethics of emerging biotechnologies, and about gender issues in sport. She is author of two books: From Bench to Bedside to Track and Field: the Context of Enhancement and its Ethical Relevance (UC Medical Humanities Press, 2014) and, with Mike McNamee, of Bioethics, Genetics and Sport (Routledge, 2018). You can read about her research at: https://silviacamporesiresearch.org/.
Dr Jonathan Ives is a Senior Lecturer in Biomedical Ethics and Law, and Deputy Director of the University of Bristol’s Centre for Ethics in Medicine. Jon has a range of administrative roles, including co-director of post graduate research for Bristol Medical School, and has two small children. In his spare time, he tries to do research on Reproductive Ethics, Research Ethics, Clinical Ethics and Methodology in Bioethics. His recent co-edited book ‘Empirical Bioethics: Theoretical and Practical Perspectives’, with Cambridge University Press, is failing to make him rich.
Dr Sridhar Venkatapuram is a Senior Lecturer of Philosophy and Global Health at King’s College London. His research and expertise is in global/public health, human rights, ethics and political philosophy, particularly the capabilities approach. He aims to bridge normative reasoning, particularly about social justice and inequality, with relevant natural and social sciences related to human health. He is currently a Visiting Fellow at the Center for Global Health, the Graduate Institute, Geneva.
Prof Annelien L. Bredenoord is a professor of Ethics of Biomedical Innovation at the University Medical Center Utrecht, The Netherlands as well as member of the Senate of the Dutch Parliament, on behalf of the political party Democrats 66 (D66). Her political portfolios are health care, ethics, privacy & data protection, and family law. Her research group seeks to identify, evaluate and promote policies and practices that ensure that biomedical innovation develops in an ethically and socially responsible matter. Recent advances in biological and medical research, such as regenerative medicine and stem cell research, next generation DNA sequencing, genome editing, reproductive technologies, biobanking and Big Data, continuously raise ethical and societal challenges: how to translate biomedical innovations from basic research into clinical care and society in an ethically sound way? Bredenoord co-authored over 90 articles and supervises several PhD students. She obtains funding from among others Horizon 2020, KWF (Dutch Cancer Society) and The Netherlands Organization for Health Research and Development ZonMw (among which a personal VENI grant).
Professor John Harris FMedSci., Member, Academia Europaea., FRSA., B.A., D.Phil., Hon. D.Litt. http://www.theguardian.com/profile/john-harris is Professor Emeritus University of Manchester and Visiting Professor in Bioethics, Department of Global Health & Social Medicine, School of Global Affairs, King’s College London. His many books Include: The Value of Life, Routledge, London, 1985. On Cloning, Routledge, London, 2004. Enhancing Evolution, Princeton University Press 2007 and How to be Good published by Oxford University Press in April 2016.
WORKSHOP CONVENORS
Dr. Karin Jongsma is a bioethicist working on ethical questions of health care decision-making (especially within digital health and psychiatry), including patient and public involvement, bio-politics, decisional authority. She received her PhD in medical ethics in 2016 (supervised by Prof. Dr Inez de Beaufort and Prof. Dr Suzanne van de Vathorst) from the Erasmus University Medical Center in Rotterdam (the Netherlands). She worked two years in Göttingen (Germany) as a post-doc, was a guest researchers at several other institutes (Ethox, Oxford; University of Tübingen; Ben-Gurion University of the Negev Israel). In September 2017 she started working as an assistant professor at the department Medical Humanities of the University Medical Center Utrecht (Prof.Dr Annelien Bredenoord). She teaches undergraduate and graduate courses in bioethics and currently supervises two PhD students.
Dr César Palacios-González is a Research Associate at the Centre of Medical Law and Ethics, King’s College London, working in the Wellcome Trust funded project “The Donation and Transfer of Human Reproductive Materials”. From September 2018 he will be a Career Development Fellow in Practical Ethics, at the University of Oxford. His background is in philosophy. He graduated from Universidad Panamericana in 2008 with a BA in Philosophy, the National Autonomous University of Mexico in 2012 with an MPhil in Philosophy, and The University of Manchester in 2015 with a PhD in Science Ethics. César’s current research focuses on the ethical and legal issues surrounding mitochondrial replacement techniques, and human/nonhuman chimera research.
Dr Adrian Blau is Senior Lecturer in Politics in the Department of Political Economy at King’s College London. He works on democracy, corruption, rationality/irrationality, and post-truth politics. He has recently edited the first ever textbook on methods in political theory (Methods in Analytical Political Theory, Cambridge University Press, 2017).
Dr Federica Lucivero is Senior Researcher in Ethics and Data at the Ethox Centre and the Wellcome Centre for Ethics and Humanities (Big Data Institute, University of Oxford). Her expertise spans across different areas and disciplines: ethics and social studies of science and technology, bioethics, governance of innovation, philosophy of science and technology. Federica’s current research focuses on the ethical aspects of the increasing introduction of IT(online portals, wearable sensors, mobile apps) in care pathways, individual health practices, and biomedical research. I am working on three main themes: a) the meanings of patient access to electronic health records (EHRs); 2) the governance of health apps; 3) the ethics and epistemology of biomedical research using EHRs.
Paul Woodgate is a Portfolio Developer in the Humanities & Social Science Department at Wellcome. He focusses on the social science and bioethics parts of the funding portfolio. Paul has been at Wellcome since 2001, having supported grant giving in Molecular & Cell Biology and Neuroscience & Mental Health before moving into his current area in 2008. Before joining Wellcome, Paul was a graduate in economics, employed by the British Medical Association then KCL.
WITH A THANKS TO OUR SPONSORS…
The PGBC 2018 organising committee would like to thank our generous sponsors: the King’s College London Faculty of Social Sciences & Public Policy Faculty Education Fund, the Institute of Medical Ethics, and the Wellcome Trust.