Tag Archives: illness narrative

20th - 21st Centuries, Contemporary, Life writing, Creative writing and Performance, Literature, Medicine and Science

The Poetics and Politics of Alzheimer’s Disease Life-Writing

by Martina Zimmermann, honorary Associate Professor in Pharmacology at Goethe University Frankfurt, with an MA in Literature and Medicine and a second PhD in Health Humanities at King’s College London.

I am a pharmaceutical scientist by training who specialised in neuropharmacology. For over 15 years, my research interests have been the molecular mechanisms that cause the death of brain cells in conditions like Alzheimer’s disease. While pursuing, and later supervising, laboratory based experimental projects, I more and more often wondered how patients actually experience the condition which I only knew from studies in cell culture and other disease models. The methodologies, models and approaches I used were unsuited to answering this question.

Still, Alzheimer’s patients would not write…

I began looking for patient accounts about a decade ago. At the time, I found only just over a dozen of books published in English, and one diary in French. I was astonished that there were so few, especially because I felt that the popular press had long preferred Alzheimer’s disease to any other subject in its health and wellbeing pages. Also, patients usually have five to ten years between diagnosis and death, and, at the time of clinically perceivable onset, can continue to articulate themselves proficiently in writing, as well as retaining figurative language. Still, Alzheimer’s patients would not write. Continue reading The Poetics and Politics of Alzheimer’s Disease Life-Writing →

Colonial, Postcolonial and Transnational Culture, Life writing, Creative writing and Performance, Literature, Medicine and Science

The long read: Arabic illness narratives and national politics

by Faten Hussein and Neil Vickers in conversation

Faten Hussein (FH) is a LAHP-funded doctoral researcher in Comparative Literature and the Medical Humanities at King’s College London. Her research investigates representations of illness in Arabic literature. She is specifically interested in what literature reveals about cultural and social attitudes towards illness, and the political, social, and economic determinants in access to health. She is about to take up a fellowship with the House of Common’s International Development Committee, through the Parliamentary Office for Science and Technology (POST).

Dr Neil Vickers (NV) is Reader in English Literature and the Medical Humanities at the Department of English, and co-director of the Centre for the Humanities and Health. He is associate editor of the journal Medical Humanities, published by the British Medical Journal group. 

NV: Hello Faten. It’s a real privilege to be able to discuss your work with you, and to bring it to wider public notice through this blog interview. Why don’t you begin by telling our readers what you work on?

FH: I work on written accounts of illness from the Arab world. These can be fictional or autobiographical and in any form, so long as illness has a central place in them.

Continue reading The long read: Arabic illness narratives and national politics →

20th - 21st Centuries, Life writing, Creative writing and Performance, Literature, Medicine and Science

Confessions of a Medical Humanist

by Neil Vickers, Reader in English Literature and Medical Humanities, Department of English

When I first came to King’s more than 10 years ago now, I was dubious about ‘the medical humanities’. I knew what the medical humanities were, or at least I thought I did. It was a name that could be applied to any attempt to make sense of matters in which medicine has a say, using ideas or frames of reference derived from humanities disciplines. But I would never have described myself as a medical humanist. My work – which until then had largely been rooted in the historical study of eighteenth- and early nineteenth-century literature – belonged in ‘English’. ‘English’ had an intellectual and institutional history I could admire (if only I had the talents of William Empson or Helen Vendler!), unlike the medical humanities, which seemed by comparison so diverse, so underdeveloped, and so wannabe. Continue reading Confessions of a Medical Humanist →